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I will be adding more information as time goes on. This topic is of great concern to many, so please check back. I have made "childhood disabilities" a category of its own.
Learning
disabilities are covered here. Subjects include: parenting,
legal issues, social issues, self-esteem and many
more.
http://www.ldonline.org/
Government
site on benefits for kids with disabilities.
http://www.ssa.gov/kids/parent6.htm
Finding a
summer camp for a child with special needs. Camp can be a
rewarding experience for a child with special needs. They can
meet new friends and build self-confidence. If this sounds like
something that would interest your child, this site is a good
starting point.
http://kidshealth.org/parent/system/ill/finding_camp_special_needs.html
Childhood
Cancer Foundation - The Candlelighters Childhood Cancer
Foundation National Office was founded in 1970 by concerned
parents of children with cancer. Advocacy, information, support,
and more.
http://www.candlelighters.org/
Keepkidshealthy.com is designed as 'a Pediatrician's guide to your children's health and safety.' It is not meant to replace the medical advice that you receive from your doctor. Instead, we hope to supplement the information that you receive from your child's physician, with a special emphasis on better health through preventative care.
KeepKidsHealthy.com
Make-A-Wish Foundation Since 1980, the Make-A-Wish Foundation® has enriched the lives of children with life-threatening medical conditions through its wish-granting work.
Make-A-Wish Foundation.org
Ronald McDonald House The idea behind the Ronald McDonald House program is simple: Provide a "home away from home" for families of seriously ill children receiving treatment at nearby hospitals.
Ronald McDonald House Charity.com
Kidney Corner - a place for information and discussion about kidneys on the Internet. The website serves as the introduction to an active electronic discussion and support group focused on pediatric kidney diseases. They focus on questions and answers, along with connecting people who have been through similar experiences.
Kidney Corner.com
Autism Resources - Autism is a developmental disability which normally appears in the first 4 years of a childs life. Autism is the result of a neurological disorder in the brain and is now said to affect 1 in every 150 children born. "Autism Society of America is dedicated to increasing public awareness about autism and the day-to-day issues faced by individuals with autism, their families and the professionals with whom they interact. The Society and its chapters share a common mission of providing information and education, and supporting research and advocating for programs and services for the autism community".
Autism Society.org
Autism-resources.com has compiled an extensive list of Autism related links and information concerning the disease. Regional chapters of Autism organizations and international chapters are listed on this site.
Autism-resources.com
Variety Clubs International - "A world-wide organization that bills itself as "The Greatest Children's Charity in the World". The aim of the 53 Variety Clubs around the world is to improve the quality of life of children who are less fortunate than others. The members, largely drawn from the world of entertainment, leisure, media and business, work untiringly to assist children who may be sick, handicapped or disadvantaged by social circumstances."
http://www.usvariety.org/index.html
Fragile X syndrome - "(FXS), the most common cause of inherited mental impairment. This impairment can range from learning disabilities to more severe cognitive or intellectual disabilities. (Sometimes referred to as mental retardation.) FXS is the most common known cause of autism or "autistic-like" behaviors. Symptoms also can include characteristic physical and behavioral features and delays in speech and language development."
Fragile X syndrome
National Organization Caring for Kids - "The mission of the National Organization Caring for Kids is to improve the quality of life for special needs children through the use of assistive technology. NOCK is dedicated to providing programs that improve the quality of life of chronically ill kids across America. Currently, NOCK is focusing its services on assistive technology. It is estimated that thousands of children do not receive medically-prescribed equipment such as wheelchairs and AAC devices due to economic barriers."
National Organization Caring for Kids
Shriners of North America - "Shriners of North America support Shriners Hospitals for Children, a one-of-a-kind international health care system of 22 hospitals dedicated to improving the lives of children by providing specialty pediatric care, innovative research and outstanding teaching programs."
Shriners of North America
Kaitlin Marie Bell Foundation
Starlight Starbright Children's Foundation - "Starlight Starbright Children's Foundation has dedicated itself to improving the quality of life for children with serious medical conditions by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness."
Starlight Starbright Children's Foundation
Devereux - "A non-profit organization providing services around the nation for persons with emotional, developmental & educational disabilities."
Devereux
Camp Good Days - "Camp Good Days provides residential camping programs at our beautiful Recreational Facility, located on the shores of Keuka Lake in Branchport, New York, as well as year-round recreational and support activities, in the Rochester, Buffalo & Syracuse, New York and Central Florida areas for the entire family, who are facing the toughest challenges of life. At Camp Good Days, participants have the opportunity to regain some of what cancer, sickle cell anemia, or violence has taken away from them."
Camp Good Days
Kelly Anne Dolan Memorial Fund - "The Kelly Anne Dolan Memorial Fund is dedicated to the uninsured needs of families caring for terminally, critically and chronically ill, seriously disabled or severely injured children through advocacy, education, information and financial assistance.
By working directly with healthcare professionals social workers, case managers, nurses and therapists throughout Pennsylvania, New Jersey and Delaware areas, patients and their families' needs are made known to the Fund through a simple application process."
"The Fund frequently directs families and the professionals caring for them to collaborating organizations and other resources locally and nationally."
Kelly Anne Dolan Memorial Fund
CaringBridge - "A CaringBridge website helps keep loved ones informed during difficult times. In return, family and friends give patient and caregiver support through guestbook messages."
CaringBridge
All Children’s Hospital - "All Children's Hospital Foundation is dedicated to bringing health, hope and happiness to children through philanthropic and volunteer support for All Children's Hospital. The Foundation works with individual donors, charitable foundations and corporations to enhance medical services and programs, and to help care for children whose families could not otherwise afford to pay."
All Children’s Hospital
American Action Fund - "The American Action Fund for Blind Children and Adults is a service agency which specializes in providing to blind people help which is not readily available to them from government programs or other existing service systems. It operates through countless volunteers across the nation, overseen by a volunteer board. The purpose of the American Action Fund for Blind Children and Adults is to assist blind and deaf-blind persons in securing reading matter, to educate the public about blindness, to provide specialized aids and appliances to the blind, to give consultation to governmental and private agencies serving the blind, to offer assistance to those losing vision in their later years, to offer services to blind children and their parents, and to work towards improving the quality of life for the blind and deaf-blind."
American Action Fund
The National Children's Cancer Society - "The N.C.C.S. provides direct financial assistance to children diagnosed with cancer and their families. This program is supported entirely by public contributions, and is made available for the families with the greatest need."
The National Children's Cancer Society
Children’s Organ Transplant Association -"The Children’s Organ Transplant Association helps children and young adults who need or have had a life-saving transplant by providing fundraising assistance and family support."
Children’s Organ Transplant Association
Children's Disabilities Information - "Articles and resources empowering parents of children with disabilities and special needs." The site also has valuable links to other resources, forums, mailing lists and more.
Children's Disabilities Information
Child Foundation - "Since our inception in 1994, Child Foundation has provided basic necessities to children living in poverty or hardship by enhancing the quality of the life for these children as well as their respective families. By providing access to education, Child Foundation hopes to increase the number of students graduating from school, and in certain countries, early matrimony."
Child Foundation
Chai Lifeline - "Chai Lifeline is an international non-profit organization dedicated to meeting the non-medical needs of seriously ill children, their families and communities. Our mission is to enhance lives through programs and services that offer friendship, good times, great memories, and social and emotional support.." Note: Regional offices and Chai Family Centers located within the USA
Chai Lifeline